Elan’s Story – Living her dream
What happened? Elan’s mother had a normal pregnancy but problems developed in labour. There was a failure by the medical staff looking after Elan’s mother
CLMedilaw Charity Support
Who are Peeps HIE and what do they do?
“Peeps was set up by my husband, Steve and I in 2018 after we found ourselves in the world of HIE. Our daughter, Heidi stopped breathing shortly after her birth, during skin-to-skin – we didn’t know the cause at the time but were later given a HIE diagnosis, which is an event that can cause injury to the brain due to a lack of of oxygen. We had never heard of HIE, and during this scary time, we found ourselves in an unknown world without any information or support about what was happening and what was to come. We had to actively search out information on the internet and through support groups to help us understand the world that we were now inhabiting.
We wanted to ensure other families got the necessary information and support we didn’t from the very early days in hospital and then through their HIE journey so we set up Peeps to provide this support.
The name Peeps HIE came from our friends, who affectionally call Heidi, “Heidi-Peeps”.”
How Peeps HIE can help your families?
“We provide free parent packs to all neonatal intensive care units across the UK to provide to families whose babies have experienced HIE . These packs provide access to information and support from the earliest possible opportunity, and a few items that offer a little comfort during the early weeks and months ahead.
We also offer peer / buddy support from someone who has been through a similar experience. We can also support through counselling and funding for equipment.”
As well as supporting those touched by HIE, we are also working with other individuals and organisations, to take part in research relating to HIE, and represent those with lived experience. We are part of the NHS Resolution Early Notification Maternity Voices Advisory Group, and along with BabyLifeline, Campaign for Safer Births and AvMA.”
Sarah set up Peeps HIE in 2018. The charity has successfully supported many families through a traumatic period in the lives giving key information and guidance when it is needed most.
To keep up to date with activities, donate or obtain guidance and support from Peeps HIE you can contact them on info@peeps-hie.org or 0800 987 5422 you can also follow them on Facebook, Instagram, Twitter and LinkedIn.
“I’m so grateful to CL Medilaw for funding the lights and sound for Scotty’s bath. He struggles badly with anxiety and having a bath with his favourite tunes and relaxing lighting will help him hugely. Thank you!"
Sal
Scott's Mum
Get in Touch Today
Clinical negligence can be traumatic and life changing for all the family. We have many years' experience working with our clients and their families helping them get the practical solutions, answers, compensation and financial support they need
